FSHD Global Research Foundation Ltd

The FSHD Global Research Foundation is an Australian not-for-profit organisation dedicated to finding a treatment and cure for Facioscapulohumeral Dystrophy (FSHD).

FSHD is one of the most common forms of muscular dystrophy and genetic hereditary diseases seen in skeletal muscle. Its prevalence varies from country to country depending on medical diagnostic competence. A 2010 report by Orphanet entitled “Prevalence of rare diseases: A bibliographic study” estimates that FSHD affects 7 in 100,000 people, while in some third world countries its prevalence is not recorded at all.

The FSHD Global Research Foundation has been solely formed to fund medical research projects in Facioscapulohumeral Dystrophy (FSHD). These research projects aim to create a better understanding of, and find appropriate treatment and a cure for FSHD.

The FSHD Global Research Foundation aims to promote funding that will improve the quality of life for people and families suffering from this cruel and misunderstood disease. FSHD Global Research Foundation aims to provide HOPE for FSHD patients and their families, as well as the Doctors/Health providers who work with FSHD sufferers.

The Foundation is currently funding a number of ground breaking research projects around the world (with a particular encouragement of Australian based research) aimed at achieving these goals.