The Friends of Sammy Joe Foundation Trichothiodystrophy,Xeroderma Pigmentosum and Cockayne's Syndrome Trust Fund

The Friends of SammyJoe Foundation is a charitable trust , we help to raise money for the children and young adults who are living with Trichothiodystrophy, Xeroderma Pigmentosum and Cockayne Syndrome , we raise money for the children and young adults of Australia .We help to provide funding for equipment , solar protective clothing as the children are allergic to UV light .